Palliative Care - your views

Introduction

100% of survey complete.

Palliative care is for people living with a terminal illness like MND. Palliative care aims to help those with the illness and their families to achieve the best quality of life possible and offers a support system to the whole family. It can provide relief from pain and other symptoms. It can also help with any psychological, social or spirtitual needs. Palliative care can be provided in the earlier stages of illness and not just at end of life, as many people think.

The Scottish Parliament is consulting with charities about palliative care in Scotland and we would really like to hear directly from people affected by MND. If you would like to have input into MND Scotland's response, please answer the following questions by the end of Thursday 6th August.

Thank you very much.

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* 1. Do you have any experience of palliative care?

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* 2. How was your experience? Did you have any problems accessing the care needed?

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* 3. Would you suggest any improvements? Is there one area that should be a priority for improvement?

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* 4. When is the right time for a health professional to discuss palliative care with their patient?

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* 5. Should the discussion be initiated by a particular health professional eg GP, specialist nurse or district nurse?

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* 6. Where should this conversation take place and who should be there?

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* 7. What is the best way to receive this information: eg. verbally, electronically or in print?

Thank you very much for completing this survey.